Private Facebook Group
Throughout our journey, we discovered a private Facebook group for families of children affected by Walker-Warburg Syndrome. This was an extremely helpful group of parents and family members that were quick to share knowledge, experiences, and advice on how to face the challenges of raising our WWS kids. If you are interested in joining this group, you will have to message the admins and be invited.
Please note that this group is only for those immediately affected by WWS.