The Eva Juneja Foundation® was created in loving memory of our first daughter who was diagnosed with Walker-Warburg Syndrome (WWS). WWS is a rare genetic disease associated with Congenital Muscular Dystrophy. It is characterized by abnormalities of the muscles, brain and eyes. Children with this diagnosis are given a challenging prognosis and a short life expectancy.
Our own personal journey navigating WWS left us feeling isolated and hopeless at times with the lack of knowledge that was available to us. We want to give comfort to those who are going through this devastating diagnosis within their own families and convey that you are not alone! Our wish is that through this website, WWS families can access education, support and connections all in one place. We also want families to see that they too can still have joyful, happy and love filled lives with their Walker-Warburg children even if the odds are stacked against them.