Kourageous Kids

Kourageous Kids is a Pediatric Hospice program affiliated with Hosparus Health in Louisville, KY. Eva was a part of the Kourageous Kids program from the day she left the hospital as a newborn. Kourageous Kids is more than just a hospice for kids, they are a support system for families that are going through the unimaginable. For example, their annual Christmas Party for all the Kourageous Kids was so special and provided the normalcy all the families craved. Eva was cared for so deeply by the entire staff at Kourageous Kids. We are thrilled to support this organization by helping kids continue to receive wonderful care and financial resources in the midst of heartbreaking circumstances. The funds directly contributed to Kourageous Kids, helps continue their mission to serve children and families in their most vulnerable time. For more information about Kourageous Kids, a part of Hosparus Health, please click link below:

Visually Impaired Preschool Services (VIPS)

Visually Impaired Preschool Services (VIPS) is an organization that helps children that are visually impaired. They provide early intervention, so that children can thrive from a young age. Eva was a part of VIPS from 3 months old, as her Walker-Warburg Syndrome diagnosis included low to no vision. We have seen first- hand the important work they do, Including in- home intervention services weekly, as well as, a wonderful preschool that Eva attended for a day. The funds directly contributed to VIPS, allows VIPS to continue to serve children in Indiana and Kentucky with vision impairment. For more information about VIPS, Please click the link below:

Norton Children’s Hospital NICU

Norton Children’s Hospital is based in Kentucky, and their Level IV NICU took care of Eva after she was born. We received tremendous care while we there through Eva’s G-Tube and brain surgeries. In addition, we were able to receive genetic testing and a diagnosis on day 1 of Eva’s life. We know that we are lucky and realize that receiving a diagnosis is not always the case for the rare disease community. The funds directly contributed to Norton Children’s Hospital NICU, allows the doctors and nurses to continue giving quality care to the most fragile babies. For more information about Norton Children’s Hospital: NiCU, Please click the link below: